Tuesday, August 25, 2009
Bad news
I try to be the eternal optimist...bad news. Something the neurosurgeon has never faced. He has heard of it, but never in kids. I have not googled anything yet. I am literally posting what I heard and about to research before he stops in again in the morning. The posterior longitudinal ligament has thickened due to over-extension and begun to calcify. This is a progressive problem that was not on previous scans. She will be discharged with a collar pending surgery in a week or two. The calcification can strangle the brain stem or the arteries that supply blood to the brain. He needs to confer with orthopedic surgeons to gather more opinion and case studies to better plan and prepare for a surgery. This would involve posterior fusion of the skull and spine through the typical opening for the decompression. The other portion of the procedure is anterior fusion. This is the big one. Transoral odontoidectomy is where they have to go through the mouth to reach the front portion of the spine to fuse. After this procedure Haley would have to be in a halo for at least 3 months to ensure the fusion holds. Completely overwhelmed...done typing.
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9 comments:
My heart just doesn't know what to say. It just makes me want to cry, but I know that is not what I am supposed to be doing here. We love you guys...all of you so much and we are and will continue to pray. Haley is strong...and you guys are too, so all together with God, we will get through this. Over and over again, we love you guys.
You all have been on my heart most of the evening I was laying in bed reading my bible and felt God tugging at my heart and got up to see if there was any new post. I have been praying and will continue to pray.
I was just reading this verse and I am going to type it here so you do not have to look it up.
Psalm 40:1-10
I waited patiently for the Lord to help me, and he turned to me and heard my cry. He lifted me out of the pit of despair, out of the mud and the mire. He set my feet on solid ground and steadied me as I walked along. He has given me a new song to sing, a hymn of praise to our God. Many will see what he has done and been amazed. They will put their trust in the Lord. Oh, the joys of those who trust the Lord who have no confidence in the proud or in those who worship idols. O Lord my God, you have performed many wonders for us. Your plans for us are too numerous to list. You have no equal. If I tried to recite all your wonderful deeds, I would never come to the end of them.
I am going to pray that this will be your victory verse. I am going to pray that while this doctor is not familiar with this in a child that we still know God is familiar. I am praying that God will continue to perform wonders through Haley and your family. While this moment feels full of despair, mid and mire, we are going to pray for the victory on the other side. We are going to trust God for a new song for the Cassidy’s to sing!!
My love, thoughts and prayers are with you!!!
Love,
Jami
I can't begin to fathom what you are all going through. I'm so sorry and I could snap my fingers and it would all go away.
Pete and Michelle, I pray that you continue to have strengh, peace, hope and comfort in walking through this time. Your heart for God in all of this is such testimony of your faith. I'm praying for you and for Hailey, especially tomorrow. We love you all! Rhonda
I am soo sorry for what poor little Haley is going thru. I can't imagine the emotions for you guys. We love ya'll sooo much. I know God has a plan that we just can't see yet. Everyone is praying for you guys.
Psalm 121: 1-2
I lift my eyes up to the Lord, where does my help come from? My help comes from the Lord the maker of Heaven and Earth.....
P.s. Give Haley Bug big kisses from Zackary...
Pete and Michelle and Haley,
We love you. You have not been out of my thoughts nor my prayers for the last few days. I think of you constantly and each time I do, I stop to pray for you.
We serve a God of hope and peace, and I pray He is that to you today.
On a more practical note, my brother had the surgery where they go in through your mouth and fuse the spine. If you want to talk to him, let me know and I can get you connected.
Much love to you all, Carol
I just tried calling you guys but I guess I have an old phone number. I am praying for Haley and the family right now. I really don't know what to say to encourage you all that you don't already know. As I was reading this morning, I kept seeing All-Powerful. This is the God we serve! He loves Haley even more than we do. He is trustworthy and will never leave our side! "Oh, Lord God; you made the skies and the earth with your very great power. There is nothing too hard for you to do." -Jeremiah 32:17
Praying for God to do great things in and through your family! Love you all! Please call me for anything!
Mandy Sand
We are praying for you all constantly. Please let us know if we can help in anyway.
I pray that today you are surrounded by the peace and comfort that only comes from our heavenly Father. He is the all-powerful Healer and no problem is too difficult for Him to overcome!
My heart goes out to the family. I am so sorry. I am praying for Haley. God Bless Haley and your family
We are thoroughly shocked and saddened by this completely unexpected turn. We will do everything we can to support you. Dawn (PSA)
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